SORD: A Lesson in Repurposing Drugs to Treat Hereditary Neuropathy
March 11, 2021
Research from a mutation on the SORD gene
News & Stories
The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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TRPV4 Hereditary Neuropathy Patients Connect with Johns Hopkins Experts to Push Research Efforts Forward
March 11, 2021
Community connected with the TRPV4 HN team at Johns Hopkins
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CMT1A Clinical Trial Update: Pharnext PREMIER trial of PXT3003
February 23, 2021
The PREMIER Trial, which is being conducted in patients with mild-to-moderate CMT1A, is expected to enroll approximately 350 subjects ages 16-65 with a confirmed genetic diagnosis of CMT1A.
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Brace Yourself For Another Day
January 27, 2021
Ginnell McDonald interview on writing Brace Yourself For Another Day
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HNF Launches NEW Virtual CMT Fitness Platform with Ambassador Instructors
January 21, 2021
Meet Marc Daigle, Christine Panico, Julie Stone who offer live classes
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Mouse Models of Human CNTNAP1 Mutations: Strategies to Rescue and Restore Functions
January 20, 2021
Research with the Department of Cellular and Integrative Physiology UT Health San Antonio, TX
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3 Reasons to Join the Global Registry for Inherited Neuropathies, GRIN!
January 18, 2021
What GRIN is and why you should join
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Kundalini Yoga Webinar
January 13, 2021
Kundalini yoga is a holistic yoga that incorporates repetitive physical movement and sometimes static postures timed with breath-work, chanting, meditation, and relaxation.
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Active Hands
January 11, 2021
Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.
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Pain Series: Part 2 - Pain & Nutrition
January 11, 2021
Join us as we explore the power of Nutrition with CMT patient and Functional Medicine Coach Paul Fowler.
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CMT-Connect Webinar Dating & CMT
January 11, 2021
Join Estela & Amin as they discuss navigating online dating and relationships with CMT.
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CMT-Connect Pain Webinar
January 8, 2021
New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.
