Contact a research partner

HNF works with academic groups, biotech and pharmaceutical companies, and contract research organizations around the world to move Charcot-Marie-Tooth treatments forward. Tell us what you are working on and we will connect you with the right resource and the right people. It is never too early to engage.

What are you looking for?

Most partnerships start with one of these. Each links to a fuller page, and you can name more than one in the form below.

GRIN registry data De-identified natural history and patient-reported outcome data for your study. Biobank samples Patient biospecimens linked to consented registry data, every subtype. Clinical trial infrastructure Trial-ready sites, validated outcome measures, and recruitment-ready cohorts. FDA & regulatory Patient-experience evidence and regulatory strategy aligned to FDA guidance. TRIAD partnership A strategic alliance across academia, government, and industry.

Who you’ll reach

Start the conversation

Inquiries go to HNF’s research team, who coordinate GRIN data and cohort requests, biobank access, and TRIAD partnerships. A real person reviews every inquiry, and we aim to respond within a few business days. Share a few details and the more you can tell us about your subtype focus and stage, the faster we can route you to the right resource and the right people.

First name Last name Phone (optional)

Organization Organization type Email Tell us about your work Text me updates from HNF. By checking this box you agree to receive recurring automated marketing text messages at the phone number provided. Consent is not a condition of any purchase or service. Message and data rates may apply. Reply STOP to cancel.

Living with CMT and want to take part in research? Join GRIN →