Press & media

Resources for journalists and media covering Charcot-Marie-Tooth disease and the Hereditary Neuropathy Foundation. For interviews, data, or assets, reach our team and we will respond quickly.

Media contact

For media inquiries, interview requests, and fact-checking, use our contact form and select Press & media. We aim to respond within one business day.

About HNF (boilerplate)

A short description press are welcome to use verbatim:

The Hereditary Neuropathy Foundation (HNF) is a 501(c)(3) nonprofit founded in 2001 to increase awareness and accurate diagnosis of Charcot-Marie-Tooth disease (CMT) and related inherited neuropathies, support people living with CMT and their families, and fund the research and infrastructure that move treatments toward the clinic. HNF's programs include GRIN, the patient-led global CMT registry; the CMT Biobank; the CMT Genie genetic-testing program; and the TRIAD research model linking academia, government, and industry.

Key facts

Founded: 2001
Mission: Awareness, accurate diagnosis, patient support, and research toward CMT treatments and cures
Flagship programs: GRIN registry, CMT Biobank, CMT Genie, TRIAD, CMT DEPLOY
Status: 501(c)(3) nonprofit
GRIN registry: 6,000+ participants across 72+ countries, in 4 languages (as of July 2026)
Gene mutations represented: 65+ (as of July 2026)
Biospecimens banked: 4,282+ (as of July 2026)
Centers of Excellence: 31
Research funded to date: $3 million

Press kit & assets

Logos & brand assets Logo system, color values, and usage rules, plus a vendor download pack. Leadership bios Founder, executive team, and the TRIAD Council. Our story How HNF started and what it has built. Milestones 25 years of CMT firsts.

Recent coverage & releases

HNF's press releases, newest first. For program news and patient stories, see News.