Started in 2013 in partnership with Hannah’s Hope Fund, the Global Registry for Inherited Neuropathies (GRIN) has been collecting invaluable self-reported natural history data directly from people living with CMT and other inherited neuropathies, as well as from their caregivers.

This data has helped HNF and its partners in industry, academia, and government identify previously unknown genotype/phenotype correlations (the link between a person’s genetic makeup and their symptoms), uncover important comorbidities such as pain and respiratory issues, and target research spending based on actual patient need. By participating in GRIN, you join a community of patients dedicated to advancing treatments and cures for CMT and other inherited neuropathies.

3 Reasons to Join GRIN

  1. Get fast-tracked into important clinical trials and studies. GRIN participants may be prioritized for studies including HNF’s pilot study collecting visual data to enhance diagnosis and support clinical trial design.
  2. Empower researchers worldwide. Your self-reported data helps our global network of researchers identify potential new avenues for therapeutic development.
  3. Benefit the entire CMT community. Every participant strengthens the collective effort. We all win together.

Join GRIN today and help us find treatments and cures for CMT and other inherited neuropathies.