HNF's New Center of Excellence: AtriumHealth Charlotte, NC
January 8, 2021
Interview on Dr. Urvi Desai
News & Stories
The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
No matches for .
Showing 181 to 192 of 314
-
-
Meditation for CMT is a No-Brainer
September 22, 2020
Can meditation benefit Charcot-Marie-Tooth symptoms? The overwhelming research and evidence points to a resounding YES… Here are 7 reasons why!
-
Ann Taylor Jones, Covid Nurse Working on the Front Lines
September 15, 2020
Ann Taylor Jones, a CMT1A patient, was told her whole life that she could never be a nurse. Now she works as a full-time ICU nurse treating COVID-19 patients.
-
HNF Collaborates with Italian CMT Organization ACMTRete on the ABCs of AFOs - Now Available in English & Italian!
September 15, 2020
Last Fall, HNF teamed up with Mitchell Warner, CPO, Ortho Rehab Designs Prosthetics and Orthotics, INC., and a panel of CMT patients to thoughtfully put together a comprehensive 10-page packet to educate and empower our community.
-
US Food and Drug Administration has agreed with Pharnext and provided clear guidance on the regulatory pathway to approval for PXT3003, including key design elements of a single pivotal Phase III study
September 15, 2020
The FDA has agreed with the key elements of Pharnext’s approach for the developmental pathway to approval for PXT3003.
-
New Pediatric Center of Excellence - Children’s Hospital Colorado, Dr. Michelle Yang
September 14, 2020
CMT patients will welcomed at our newest Center of Excellence, Children's Hospital Colorado. Here they can meet with a rehabilitation specialist, orthopedic surgeon, occupational and physical therapists, as well as a neuropsychologist.
-
THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD) PROGRAM REQUEST FOR PROPOSAL GUIDELINES
September 9, 2020
The Hereditary Neuropathy Foundation (HNF) would like to advance preclinical research as quickly as possible if it aligns with our key objectives.
-
Matt Downing Takes the Reins as HNF’s New Board Chairman
September 3, 2020
Matt Downing has been selected as Chairman of the HNF Board of Directors
-
Clinical Trial for CMT1A begins in Korea
July 23, 2020
Helixmith, specializing in gene therapy research for over 20 years, has kicked off its phase I and 2a clinical trial for using VM202 (Engensis) to treat CMT1A.
