Events
The days we all show up.
A bridge full of runners in Team CMT singlets. A bingo hall in Baltimore. A clay range outside Fort Worth. A ballroom where the researcher presenting has the same diagnosis as the person asking the question.
Some of these raise the money. Some collect the blood and the mobility data the science is built on. Some exist so a family who has never met another person with CMT can spend a day surrounded by them. Every one is open. Pick a date and we will see you there.
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September 2026
CMT Awareness Month
Anywhere
This year the theme is #ThisIsCMT. Show the world what CMT actually looks like for you, in your own words.
Seven ways to take part -
Dates all year
CMT Biobank collection dates
Cities across the country
Collections run across the country all year. Donating a specimen gives researchers the biological material CMT studies are built on.
Book a collection date -
October 17, 2026
Jaxson's Clay Shoot
Joshua, TX
A clay shoot held in Jaxson Flynt’s name, funding the gene therapy work aimed at saving the sight his subtype takes.
Event details -
October 24, 2026
Brews & Bingo
Baltimore, MD
Bingo, music and raffles at a Baltimore brewery. The easiest night on the calendar to bring someone who has never been to a CMT event.
Event details -
November 1, 2026
TCS New York City Marathon
New York, NY
Fifty thousand runners, and a handful of them in Team CMT singlets, running a marathon for a disease that makes walking hard.
Run for Team CMT -
November 7, 2026
CMT Family Conference
Kansas City
A day for CMT families at the University of Kansas Health System, where the questions finally get answered in person.
Register -
December 1, 2026
Giving Tuesday
Anywhere
The global day of giving, and the biggest day of the year for small donations. Every dollar goes into CMT research.
Give on the day -
April 2027, date to be announced
CMT Summit and Retreat
Baltimore, MD
The one meeting of the year that puts patients, clinicians, researchers and industry in a room. It is also a research site.
About the Summit -
May 2, 2027
Bike New York
New York, NY
Forty miles through all five boroughs on streets closed to cars, riding with Team CMT. Many riders can still cycle when running is out.
Ride with Team CMT
Want to host one?
Bingo nights, clay shoots and birthday fundraisers all started with somebody deciding to run one. If you have an idea, tell us and we will help you set it up.