Privacy policy
The Hereditary Neuropathy Foundation (HNF) respects your privacy. This policy explains what information this website collects, how we use it, and the choices you have.
Information we collect
Information you give us: when you use our contact form, sign up for email updates, make a donation, or register for an event, we collect what you provide, such as your name, email address, and message or donation details.
Information collected automatically: like most websites, we collect limited technical data (such as your browser type, device, and pages visited) through analytics and cookies to understand how the site is used and to improve it.
The GRIN patient registry is separate
Data you contribute to GRIN, the Global Registry for Inherited Neuropathies, is governed by its own IRB-approved consent and privacy protections, not by this website policy. Registry data is de-identified and only approved researchers and partners can access it. See the GRIN registry pages for details.
How we use your information
To respond to your inquiries, deliver the updates or resources you request, process and acknowledge donations, run events, and improve the site. We do not sell your personal information.
Service providers we share data with
We use trusted third-party services to operate: an email platform for newsletters and receipts, a donation processor for gifts, and website analytics. These providers may process your data only to perform services for HNF.
Cookies & your choices
You can set your browser to refuse cookies or alert you when cookies are being sent. You can unsubscribe from our emails at any time using the link in any message. You may request access to, correction of, or deletion of your personal information by contacting us.
Data security & children
We take reasonable measures to protect your information. No method of transmission over the internet is completely secure, so we cannot guarantee absolute security. This site is not directed to children under 13, and we do not knowingly collect their personal information.
Changes & contact
We may update this policy from time to time; the effective date will appear here. Questions about your privacy? Reach us through our contact form.