News Archive

Older news, stories, and announcements from the Hereditary Neuropathy Foundation, preserved for the record. For current information, see News & Stories.

CMT Update Every issue of our newsletter, 2014 to 2024 35 back issues, free to read and download.

387 archived items

2023

CMT Awareness Month 2023 Hope. Courage. Action. August 30, 2023
HNF Recibió 2023 Health Equity en RARE Impact Grant May 22, 2023
HNF Awarded 2023 Health Equity in RARE Impact Grant May 15, 2023

2022

Jaxson's Shotguns & Guitars October 16, 2022
CMT&ME App Study Presented at PNS Meeting 2022 June 1, 2022
Meet Amy Bois FUNctional Ambassador April 1, 2022

2021

Jaxson’s Clay Shoot 2021 October 23, 2021
#100outof100 June 10, 2021
Meet New Movement Is Medicine™ Ambassador, Janice Laurence May 20, 2021
Meet New Movement Is Medicine™ Ambassador, Traci Williams May 19, 2021
Meet our New Movement is Medicine™ Ambassador, Traci Williams May 10, 2021
“Grow or Mow” A Sheer Success! May 10, 2021
New Center of Excellence Dr. Nassin Rad UW Medicine, Seattle, Washington May 10, 2021
Rare Disease Day "Living with CMT" 2022 Art Competition February 1, 2021
Act of Kindness: From Strangers to Instant Friends January 18, 2021
Free CMT Genetic Testing for a Common Axonal type of CMT to Prepare for Clinical Trial January 18, 2021
How does HNF educate Healthcare Providers? Meet Elizabeth Katz Publisher, Neurology Review January 18, 2021
Young Entrepreneur with CMT1A Launches Company January 9, 2021

2020

PFDD Meeting, September 28, 2018 December 19, 2020
Jaxson’s Spooky Shoot 2020 November 23, 2020
Telemedicine November 11, 2020
Joy Perry and The Christmas Bow October 5, 2020
CMT&Me COMPETITION October 1, 2020
Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT) Calling CMT1A Patients Ages 18-75 September 1, 2020
NEW CMT Stationery by Designer, Dakota Reilly - Blue Bear August 31, 2020
SEPTEMBER IS CMT AWARENESS MONTH 2020 THEME “CMT IS RUFF” August 26, 2020
The Miracle We’ve Been Praying For! July 21, 2020
Good News for CMT1A Patients - PXT3003 June 9, 2020
Novel findings of a new common type of CMT2 that might be the 1st step to a treatment: SORD gene deficiency, the most common autosomal-recessive type of CMT June 7, 2020
GRIN powers HNF’s patient-centered research and drug discovery initiatives. April 15, 2020
$61,000 Raised to Support Pediatric CMT Trials April 9, 2020
Pharnext Announces PXT3003 for the Treatment of Charcot-Marie-Tooth Disease Type 1A has Been Granted Promising Innovative Medicine (PIM) Designation by UK Medicines and Healthcare Products Regulatory Agency March 18, 2020
Pharnext raises € 7.7 million in a private placement March 11, 2020
ACE-083 did not achieve statistically significant improvements in functional endpoints relative to placebo; Acceleron to discontinue development of ACE-083. March 11, 2020
The Hereditary Neuropathy Foundation's Movement is Medicine™ Program Expands to Florida and Continues to Shed Light on the Impact Exercise Has on Charcot-Marie-Tooth (CMT) March 11, 2020
HNF on the Forefront of Pain Research to Support CMT Patients January 9, 2020
Telling Our Story January 9, 2020
Calling all Grandparents (and Parents)! January 9, 2020
CMT-Connect Webinar: Surgery & CMT with Dr. Glenn Pfeffer January 9, 2020
HNF Shining the Light On CMT at AANEM Annual Meeting January 9, 2020
Hope for the Future for Owen January 9, 2020
Potential Novel Treatment for a Rare Form of Charcot-Marie-Tooth (CMT) Neuropathy January 8, 2020
HNF's Pediatric Neurology Round Table at Child Neurology Society Conference January 8, 2020
Digital Assessments of Balance and Gait in People with Charcot-Marie-Tooth Disease Study January 8, 2020
CMT&ME APP Adds New Medical Profile January 6, 2020
HNF tackles the hidden mysteries behind the genetic diagnosis of CMT mitochondrial diseases January 4, 2020
PATIENT’S VIEW OF HNF MOVEMENT IS MEDICINE SUMMIT January 3, 2020
A Successful Movement is Medicine™ Summit January 3, 2020

2019

Won't You Please Consider A Year End Gift? December 23, 2019
HNF & Inspire Present Poster at Global Genes 2019 Rare Drug Development Symposium November 6, 2019
Orphan Disease Center Million Dollar Bike Ride Pilot Grant Program August 23, 2019
Christina Chambers Ability360 July 11, 2019
Align with Happiness July 11, 2019
Ability360 CMT-Connect Webinar June 11, 2019
Help Support HNF with the RoundUp app June 4, 2019
What Is Fast Track? May 29, 2019
Top 10 Reasons to Attend HNF’s Movement is Medicine™ Summit May 21, 2019
Meet Cathy Power, CMT Patient that Plans to Attend Movement is Medicine™ Summit in November May 21, 2019
HNF Featured in Rare Neurological Disease Special Report April 9, 2019
2019 Million Dollar Bike Ride March 18, 2019
Healing from the Inside Out - Self Love & CMT March 11, 2019
HNF Charitable Partner Events March 7, 2019
An Evening For Charity February 4, 2019
Accessible Travel January 11, 2019

2018

CMT On The Cloud December 27, 2018
How One Rare Disease Organization Used Technology to Provide Greater Patient Insight to FDA November 19, 2018
CMT & Exercise: Made for Modus November 11, 2018
Child Neurology Foundation (CNF) Leads a Collaborative Peer Support Work Group November 1, 2018
Join GRIN! About The Global Registry for Inherited Neuropathies October 29, 2018
I Am Helena The Mermaid And I Have CMT Disease October 25, 2018
Author & Team CMT Founder Chris Wodke Releases Her Second Book October 18, 2018
HNF Joins Inherited Neuropathy Consortium October 15, 2018
Inspire Community October 11, 2018
Cannabis Community Care & Research Network (C3RN) Partners with HNF October 11, 2018
CMT&Me App Webinar August 11, 2018
Allison Moore Speaker at 2018 Rare Patient Advocacy Symposium July 26, 2018
Thank You and Congratulations To Team CMT Riders July 16, 2018
Why I’ll be attending the “Voice of the Patient Weekend” A Patient’s Perspective July 12, 2018
Catching up with Team CMT Member Katherine Crandall Symons July 9, 2018
Dr. Lucia Notterpek to Take the Reins as HNF’s New Chief Scientific Officer. July 5, 2018
HNF'S Board is Growing! July 2, 2018
Meet Dr. Raghav Govindarajan MU Health Care July 1, 2018
Designing a Better Grip Active Hands Q&A with Rob Smith June 28, 2018
Traveling With A Disability June 27, 2018
Meet Alana Kessler, MS RDN E-RYT: Nutritionist, Dietitian & Wellness Expert June 25, 2018
Meet Lainie Ishbia Speaker - Behavioral Health & CMT June 25, 2018
Meet Linda Crabtree: Author of “CMT and Me” June 22, 2018
Panetta Physical Therapy Webinar May 10, 2018
Global Genes To Host The 2018 RARE Patient Advocacy Symposium April 25, 2018
HNF’s Landmark Externally-Led Patient-Focused Drug Development Meeting April 13, 2018
CMT & Finances April 11, 2018
The CMT Community Needs You! April 10, 2018
Em-bracing Fashion with Lainie Ishbia April 7, 2018
Neurology Reviews® & NORD Publish 2018 Rare Neurological Disease Special Report April 2, 2018
CMT Careers: No Piece Of Cake March 31, 2018
Meet the 2018 TD Bank Five Boro Bike Tour Team CMT March 28, 2018
$200,000 In Donations From True Reply Supports CMT Research March 27, 2018
StarWise Therapeutics LLC & HNF Join Forces for Treatment of CMT2A March 26, 2018
Breathing Problems? What Do They Mean, Breathing Problems? March 25, 2018
Why HCP’s Should Join HNF’s Provider Directory March 22, 2018
Muscle Cramp Study Underway March 20, 2018
What Is An Externally-Led PFDD Meeting? March 19, 2018
HNF’s Roadmap To Clinical Trial Development March 16, 2018
TCS NYC Marathon Training Begins March 12, 2018
10 Reasons To Join The Inspire CMT Community February 5, 2018
New Executive Director for HNF: Courtney Hollett February 1, 2018
Landmark “Voice of the Patient” PFDD CMT Meeting Needs All Hands on Deck! January 29, 2018
Introducing the New Helios GX with Monica Tullar January 15, 2018
Grace’s 2017 Courage Crusade: Fundraiser for CMT2 January 13, 2018
Inner Peace Meditation January 11, 2018
Overview of the Patient-Centered CMT/HNPP Pain Summit 2017 January 8, 2018
Team CMT Members Capture National Titles January 8, 2018
Chrome Divas Host Another Successful CMT6 Event January 6, 2018
Gearing Up for the TD Bank Five Boro Bike Tour January 4, 2018

2017

Hope on the Horizon: CMT & FDA Patient-Focused Drug Development Meeting for Charcot-Marie-Tooth to be Held in 2018 December 4, 2017
We Care About Research for Hereditary Neuropathy with Liability to Pressure Palsies (HNPP)! September 27, 2017
Hereditary Neuropathy Foundation Announces Patient-Centered CMT/HNPP Pain Summit September 26, 2017
CMT & Balance Webinar September 11, 2017
Q&A with Inspire CMT Community Member Amanda Pool August 25, 2017
Q&A with Dakota Reilly Impact of AlterG on Charcot-Marie-Tooth August 5, 2017
MightyMan Half Iron Distance Supports HNF July 31, 2017
Calling All Team CMT Members! July 31, 2017
Setting Sail For CMT: Manhattan Cruise Successfully Raises Research Funds July 31, 2017
We're Partnering With The Mighty! May 3, 2017
Natural History Study to Support CMT Research May 2, 2017
Exciting Corporate News: Invitae, A Genetic Information Company, Acquires AltaVoice April 27, 2017
Q&A with Dave Washabaugh: TD Bank Five Boro Bike Tour Team Member April 27, 2017
Calling Everyone With CMT/IN April 27, 2017
Tips for Living with CMT April 25, 2017
New Collaboration with the University of North Carolina at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy April 24, 2017
Rare Neurological Disease Special Report Features CMT and HNF! March 31, 2017
RV Tips and Advice: Rick Cole the CMTrv'er March 30, 2017
TD Bank Five boro Tour: May 7, 2017 March 26, 2017
Zumbathon Brigantine, New Jersey: June 10, 2017 March 26, 2017
Set Sail For CMT: Saturday June 17, 2017 March 25, 2017
Disease Awareness Problem March 23, 2017
Two New Charcot-Marie-Tooth (CMT) Surveys Regarding Orthotics Use and Autonomic Neuropathy Prevalence March 13, 2017
Join HNF for Rare Disease Week via Live Streaming Video March 2, 2017 February 27, 2017
Neurotoxic Rx wallet card February 15, 2017
Tips on Managing Chronic Pain February 14, 2017
“Take A Look At This Heart” February 10, 2017
CMT-Connect Online Essential Oil Webinar March 8, 2017 February 2, 2017
Scavenger Hunt Motorcycle Event for CMT6: A Success January 10, 2017
Top 10 Ways to Spread CMT Awareness January 2, 2017
Thank You to Everyone Involved with PLEO-CMT Trial! January 2, 2017

2016

HNPP Study Available for HNF Members December 19, 2016
CMT-Connect: January 12, 2017 HNF Takes CMT-Connect On-Line! December 5, 2016
January 27, 2017 - Bridge/Brunch Fundraiser December 5, 2016
Scavenger Hunt Victor, New York: September 9, 2017 December 2, 2016
Summer Send-Off Celebration, Charlestown, RI: September 23, 2017 December 1, 2016
Patient-Centered Summit for CMT/HNPP: Cambridge, MA November 3, 2017 November 25, 2016
Rick's RV Road Trip to Spread Awareness for Charcot-Marie-Tooth November 22, 2016
Q&A with CMTRV'er Richard Cole November 8, 2016
#GivingTuesday: November 29, 2016: Time To Give Back This Holiday Season October 28, 2016
Summit Panelist Spotlight: Caregiver Kerin Reilly September 30, 2016
CMT Kids Video September 19, 2016
Summit Panelist Spotlight: Mitchell Warner August 30, 2016
Summit Panelist Spotlight: Renée Arnold August 29, 2016
Summit Panelist Spotlight: Brent Baker August 29, 2016
Summit Panelist Spotlight: Dr. Steven Gray August 29, 2016
Summit Panelist Spotlight: Bernadette Scarduzio August 29, 2016
Summit Panelist Spotlight: John Maddox August 29, 2016
Summit Panelist Spotlight: Dr. Xinliang Albert Liu August 29, 2016
Summit Panelist Spotlight: Joy Aldrich August 29, 2016
Summit Speaker Spotlight: Allison Moore August 29, 2016
Summit Speaker Spotlight: Dr. Timothy R. Coté August 23, 2016
Summit Panelist Spotlight: Dr. David Walk August 23, 2016
Register for the Patient-Centered CMT Summit August 16, 2016
Summit Speaker Spotlight HNF's CSO Sean Ekins August 14, 2016
Summit Panelist Spotlight Matt Downing August 14, 2016
Summit Speaker Spotlight: Kim Goodsell, The Patient Of The Future August 13, 2016
Summit Speaker Spotlight: Lori Sames of Hannah's Hope Fund August 13, 2016
Summit Panelist Spotlight: Debi Houliares August 13, 2016
Summit Speaker Spotlight: Robert Moore August 8, 2016
Summit Speaker Spotlight: Dr. Florian Thomas August 8, 2016
Summit Panelist Spotlight: Genetic Counselor Chris Tan August 8, 2016
Summit Panelist Spotlight: Dr. Mark Gudesblatt August 8, 2016
Summit Speaker Spotlight: Dr. Robert Burgess August 4, 2016
Summit Speaker Spotlight: Dr. James Nussbaum August 4, 2016
Summit Speaker Spotlight: Tim Boyd From NORD August 3, 2016
Summit Speaker Spotlight: Dr. Lucia Notterpek July 27, 2016
Summit Panelist Spotlight: Estela Lugo July 27, 2016
Summit Panelist Spotlight: Kristin Gelzinis July 27, 2016
Summit Panelist Spotlight: Jennifer Decker July 26, 2016
Meet Stefanie Sacks CMT Summit Keynote Speaker July 19, 2016
10 Ways Participating In GRIN Helps Support CMT/IN Research July 14, 2016
Summit Panelist Spotlight: Team CMT Founder Chris Wodke July 13, 2016
The CMT Caregiver: Insights From Summit Speaker Gary Barg June 28, 2016
Dorothy J. Fairman Memorial Travel Scholarship June 21, 2016
CMT and Exercise June 20, 2016
About the Patient-Centered Charcot-Marie-Tooth Summit June 15, 2016
What Do We Mean By "Patient-Centered"? June 13, 2016
Q&A With Summit Attendee Jim Matthews June 3, 2016
Headaches and Charcot-Marie-Tooth June 1, 2016
How To Stay Sun Safe Year Round May 26, 2016
About The Summit Venue: 3 West Club, New York City May 26, 2016
Summit Speaker Spotlight: Gary Barg, The Fearless Caregiver May 25, 2016
The purpose of the HNF Patient-Centered Charcot-Marie-Tooth Summit May 23, 2016
Applying for Disability with Hereditary Neuropathy or CMT May 19, 2016
Top Ten Ways Participating in GRIN Helps Support CMT/IN Research May 19, 2016
Local Caped Crusaders Lead 2nd Annual Super Hero 5K For Autosomal Dominant Optic Atrophy May 13, 2016
A Night To Remember: First Casino Night Event For CMT6 May 13, 2016
Lung function and breathing issues with Charcot-Marie-Tooth May 10, 2016
Radio interview with Jenny Decker May 9, 2016
HNF’s New Accomplishments! April 30, 2016
Thursday, October 6, 2016: HNF Patient Centered Research Outcomes Summit April 26, 2016
HNF 1 Of 20 Rare Disease Groups Selected To Develop Natural History Studies By NORD April 20, 2016
Cholesterol And Your Health April 13, 2016
Meet Molly: A True CMT Warrior April 6, 2016
The Hereditary Neuropathy Foundation Announces New Partnership With Acetylon Pharmaceuticals To Explore Potential Therapies For Charcot-Marie-Tooth Disease April 6, 2016
Hot Topic In HNF’s Inspire Online Support And Discussion Community: Hearing Loss And Charcot-Marie-Tooth March 23, 2016
Q&A on Genetic Testing with Stephanie Gandomi, M.S., LCGC, of Invitae March 23, 2016
H.E.L.P. Card Party CMT2A Fundraiser February 10, 2016
Big Island Circumnavigation For Charcot-Marie-Tooth Awareness February 9, 2016
Symptoms & Charcot-Marie-Tooth Disease January 7, 2016

2015

Living with Charcot-Marie-Tooth: Leg Braces & Air Travel December 17, 2015
We’re Here To Help: The Hereditary Neuropathy Foundation’s Healthcare Provider Directory December 14, 2015
Ride For Charcot-Marie-Tooth Awareness & Research: 2016 TD Bank Five Boro Bike Tour December 8, 2015
Keep Track Of Your Health Information With Medicare’s Blue Button December 3, 2015
CMT 6 Football Event December 1, 2015
#GivingTuesday: Why Do We Give? November 24, 2015
Do You Need Ideas For Shoes To Accommodate Your Braces? November 24, 2015
Does your Charcot-Marie-Tooth symptoms make dog ownership difficult? November 16, 2015
Champions For Charity: Helping Those Living With Charcot-Marie-Tooth November 16, 2015
Leg Braces, AFOs & CMT: Finding the Right Fit November 13, 2015
Team CMT: Join The Movement & Make A Difference! November 9, 2015
#MyGivingStory November 2, 2015
#GivingTuesday December 1, 2015: Giving Back This Holiday Season November 2, 2015
Tips For Living With Charcot-Marie-Tooth During The Holidays October 29, 2015
Neurotoxic Drugs & Charcot-Marie-Tooth Disease: What You Need To Know October 25, 2015
Breaking Down The Barriers Of Charcot-Marie-Tooth Disease October 22, 2015
CBS News Report: A Mother's Quest To Find Cure For Rare Genetic Defect October 19, 2015
Thursday, December 3, Sunday, December 6: Champions for Charity Americana Manhasset, New York October 19, 2015
Save the Date: Friday January 29, 2016 Boca Raton, Florida to Benefit CMT Type 2 October 18, 2015
One More Rep: Ed Moore Is Working Out For Charcot-Marie-Tooth Awareness October 18, 2015
Jillian’s Cure Super Hero 5K: Help Save Children With Optic Atrophy October 17, 2015
Hereditary Optic Neuropathy October 15, 2015
Our Commitment To Charcot-Marie-Tooth Awareness Never Ends September 30, 2015
Charcot-Marie-Tooth Won’t Stop The ‘Karaoke King September 23, 2015
#SeptemberSelfieCMT For Charcot-Marie-Tooth Awareness Month September 21, 2015
Every Voice Makes A Difference: Social Media Awareness For Charcot-Marie-Tooth Disease September 18, 2015
My 50th Birthday Wish: A Special Message From HNF Founder Allison Moore September 14, 2015
Muscle Matters: Exercise And Charcot-Marie-Tooth Disease September 10, 2015
What It’s Like To Live With Charcot-Marie-Tooth Disease: The Stories Of Those Who Know It Best September 7, 2015
Lend A Helping Hand: Join Our #ShowYourHandsCMT Social Media Campaign! September 3, 2015
Chrome Diva’s First Annual Motorcycle Scavenger Hunt August 31, 2015
Nominate yourself or a loved one as a CMT Warrior! August 28, 2015
Update on Michael Watkins, Team CMT Member August 18, 2015
September is Charcot-Marie-Tooth (CMT) Awareness Month August 18, 2015
HNF Sponsors 2015 Peripheral Nerve Society Conference in Canada August 18, 2015
Introducting HNF’s Health Care Providers Directory August 18, 2015
HNF Physician Spotlight: Dr. Wayne Berberian August 18, 2015
A Bi-Directional, Translational Model of Resistance-Type Exercise Training in the Management of Charcot-Marie-Tooth (CMT) Disease August 18, 2015
Pizza with a Purpose Various Locations -September 2015 August 17, 2015
My last month in numbers June 15, 2015
Accepting Myself for Who I Am June 7, 2015
Our CMT Inspire Community, Soon to be 2,000 Strong! June 4, 2015
The Long Road to Diagnosis Renews Dedication to Advocacy June 1, 2015
Greensboro Survey Study for Genetic Counseling and Genetic Testing May 27, 2015
Introducing Our Newest Scientific Advisory Board Member May 27, 2015
New Strategic Alliance with Rare Disease Report (RDR) May 27, 2015
It's probably nothing May 11, 2015
Making a difference in the CMT Community April 21, 2015
Work, Ride, Eat, Sleep, Repeat... April 15, 2015
March 29, 2015: OK...Now What? March 30, 2015
Sixth Annual Card Party Brunch March 10, 2015
Calling All Cyclists… Enjoy NY Sights While Riding to Cure CMT! March 10, 2015
Bike NY Spotlight: Kristin Gelzins March 10, 2015
Team CMT Takes on the Bermuda Triple Challenge March 10, 2015
Q & A with Andy Heck March 9, 2015
New HNF Team Member, Joy Aldrich Inspires Others Through the CMT Inspire Patient Community March 9, 2015
Double Your Donation March 9, 2015
Taking Matters Into Your Own Hands March 9, 2015
Now GRIN is Accessible in 141 Different Languages! March 9, 2015
Accelerating Patient Access to Investigational Drugs in 2015 March 9, 2015
Support CMT Therapeutic Alliance March 9, 2015
Scientific Advisory Board Meeting March 9, 2015
Finding Experts Health Care Providers for Charcot-Marie-Tooth March 6, 2015
Saturday April 18, 2015: Jillian's Cure SUPERHERO 5K January 29, 2015
Sunday May 1, 2016: 2016 TD Bank Five Boro Bike Tour January 28, 2015
Saturday July 25, 2015: The Rochester Chrome Divas Charity Benefit January 27, 2015
August 16, 2015 Grace's Courage Crusade Eighth Annual Fundraiser January 20, 2015

2014

A Rare Disease Patient That Does It All! December 18, 2014
Hot Off the Press December 16, 2014
BioPontis Aliance for Rare Disease: Joint Venture with HNF December 9, 2014
Collaboration is the Key to HNF Success December 4, 2014
Grace's Courage Crusade Brunch by the Beach 2014 November 12, 2014
Coaching Athletes with Charcot-Marie-Tooth September 17, 2014
Sneak Peak of Fall Newsletter: CMT Research Study Survey September 16, 2014
Wednesday, September 17th 7-8:30pm EST for a "Rare Neuropathies" Facebook Chat September 12, 2014
Q & A Occupational Therapy September 5, 2014
The Surgical Correction of CMT Deformity September 5, 2014
Q & A with Podiatrist September 5, 2014
Mixed Martial Arts and Charcot-Marie-Tooth September 5, 2014
Top Pedorthic Experts Answer your Questions about CMT and Footwear September 5, 2014
Classic CMT Foot Symptoms and How to Treat Them August 29, 2014
United Nations Stresses Exercise for Noncommunicable Diseases like Charcot-Marie-Tooth August 20, 2014
The Un-selfie4CMT Campaign! August 19, 2014
Spread Awareness - Visit California Pizza Kitchen During September: CMT Awareness Month August 19, 2014
Building Awareness on CMT and Supporting the Patient Community - HNF Announces Support from Pharnext August 19, 2014
Lyme Disease and Charcot-Marie-tooth: What You Need to Know August 19, 2014
WEDDING FOR A CAUSE! August 19, 2014
Join Team CMT - Be a part of finding a cure! August 19, 2014
Meet Elizabeth Stenz, Team CMT Member August 19, 2014
In Memoriam August 19, 2014
Help us answer questions that your doctors and the CMT Research Community aren’t too sure about. August 19, 2014
Introducing A New Scientific Advisory Board Member August 19, 2014
Targeting PMP22 in CMT1A Patients with Gene Duplication August 19, 2014
Grab Your Shoes and Spin CRANK Style NYC! August 19, 2014
September is CMT Awareness Month August 19, 2014
CMT Research Update: The Drug Discovery Process August 6, 2014
Charcot-Marie-Tooth Frequently Asked Questions August 6, 2014
Living with CMT: Key Topics August 6, 2014
Exercise for people with CMT: Frequently Asked Questions Q & A Dr. Robert Chetlin August 4, 2014
CMT Personal Story: Chemotherapy and Charcot-Marie-Tooth July 22, 2014
Embrace the Brace: A Mother’s Perspective on Helios July 10, 2014
Quality of Life and CMT Research July 7, 2014
Foods That Help Muscle Recovery July 3, 2014
Perception Shift June 22, 2014
Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth June 19, 2014
Member Alyson O’Connor Won’t Let Her CMT Stop Her! May 21, 2014
From the words of a CMT Hero May 19, 2014
Help us answer questions that your doctors and the CMT Research Community aren’t too sure about. May 19, 2014
Using Zebrafish to Search for Therapeutics for CMT2A May 16, 2014
Saturday September 27, 2014: Spin for the Cure New York City May 11, 2014
Sunday, November 2, 2014: Grace's Courage Crusade Brunch May 11, 2014
November 7, 2014: A Hollywood Affair May 11, 2014
November 15, 2014: Havana Nights Fundraiser May 10, 2014
Thursday, December 4, Saturday, December 6: Champions for Charity Shop Til You Drop Americana Manhasset, New York May 9, 2014
Treating Children with Charcot-Marie-Tooth: Surgery May 9, 2014
Hand Surgery and Carpal Tunnel Syndrome March 13, 2014
Hot off the press February 28, 2014
New Study on CMT Type 2B February 12, 2014
Arlene is Teaching Tolerance "Staff Pick" January 27, 2014
Margie's Special Birthday Wish January 18, 2014

2013

Patients Helping Themselves With The Global Registry for Inherited Neuropathy November 26, 2013
Curry Turkey Salad Sliders November 26, 2013
Make Ahead Mashed Potatoes November 25, 2013
Turkey Chowder November 25, 2013
Holiday Cranberry Sauce November 25, 2013
Pumpkin Marble Cheesecake November 25, 2013
Grace's Courage Crusade Brunch 2013 November 8, 2013
Bernadette Released October 31, 2013
Caramel Corn Chocolate Chip Cookies October 29, 2013
Hot Off the Press October 29, 2013
Hot off the press September 13, 2013
Arclight Presents...BERNADETTE (NYR) September 17, 2013 September 12, 2013
Allison Moore is going to be published! September 6, 2013
September is CMT Awareness Month, Help HNF Spread the Word August 31, 2013
Dr. Sean Ekins named C.S.O. of HNF August 21, 2013
The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical Research Network (RDCRN) contact registry are very different types of databases. July 19, 2013
Global Registry for Inherited Neuropathy (GRIN) Vs the Rare Disease Clinical Research Network (RDCRN) July 19, 2013
Another Successful Year Spreading CMT Awareness July 12, 2013
Q & A with Podiatrist: Dr. Lee Reiter June 25, 2013
New Registry Helps Researchers Find A Cure: Q & A with CEO Kyle Brown, Crossroads June 25, 2013
The Neuropathy Association and the Hereditary Neuropathy Foundation: Co-Host the “Hereditary Neuropathies” Facebook Chat July 24th! June 25, 2013
HNF and Wave Skater form a Partnership June 24, 2013
Talking With Classmates about CMT June 5, 2013
Team CMT Kids Goes the Distance! May 23, 2013
HNF-WVU-NIOSH Study update: May 9, 2013
Canine Companions for Independence (CCI) has provided trained assistance dogs for children and adults with disabilities since 1975 May 8, 2013
Joseph Torello: HNF Supporter and lives daily with CMT May 8, 2013
School Outreach Program Spreads Its Message Nationwide April 30, 2013
Meet Abby Ziff, Sales Director, Strategic Accounts, WebMD. April 1, 2013
One Woman’s Success with Surgery April 1, 2013
Meet your Team CMT Manager April 1, 2013
BERNADETTE SCARDUZIO: The Face of Charcot-Marie-Tooth Disease April 1, 2013
Assay Depot And Rare Genomics Institute Award Prizes To Study 26 Rare Diseases April 1, 2013
School Outreach Program Update March 21, 2013
“Fighter Mom’s” Join Forces February 27, 2013
"Fighter Mom's" Join Forces February 27, 2013
HNF Charity Partner for the MetroTex Charitable Trust Run For Fun Irving, Texas: Saturday May 3, 2014 February 10, 2013
HNF Charity Partner: TD Five Boro Bike Tour May 4, 2014 February 9, 2013
March 2013: Arlene sequel available! January 8, 2013

2012

Grace's Courage Crusade Brunch 2012 October 31, 2012
Hampton's Spin 2012: Booming Success August 13, 2012
July 28, 2012: Hamptons Spin-a-thon & Party! June 1, 2012
June 3, 2012: Wine, Beer and Vodka Tasting April 1, 2012
First Spin-a-thon of 2012 a Smashing Success! April 1, 2012
April 16, 2012: Team CMT Leader to Run Boston Marathon March 31, 2012
May 5, 2013: Five Boro Bike Tour March 18, 2012
Saturday, Nov 10, 2012: Richmond Half-Marathon Fundraiser March 13, 2012
March 31, 2012--Spin for the Cure, New Jersey! February 15, 2012

2011

HNF to fund promising research on Charcot-Marie-Tooth December 18, 2011
December 1-3, 2011 - Champions for Charity November 20, 2011
Grace's Courage Crusade Brunch 2011 October 30, 2011
Spin-a-thon 2011 October 24, 2011