The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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May 19, 2021
Ryan Jacobson - a neuromuscular specialist at Rush University in Chicago. Completed neurology and neuromuscular training at the University of Michigan in Ann Arbor, Michigan.
May 13, 2021
Michael Balm, MD, Oregon Neurology is Mayo Clinic Neurology trained, with an additional fellowship in Neurophysiology.
May 10, 2021
HNF Launches the Ultimate CMT Amazon Wish List
May 10, 2021
HNF Welcomes New Board Member, Natalia Salejko
May 7, 2021
When a Pandemic Hits... CMT’ers Adapt as Usual!
May 6, 2021
New Study Measures Progression of CMT1A Nerve Impairment
May 5, 2021
New Study Measures Progression of CMT1A Nerve Impairment
April 28, 2021
Study Shows Sustained Benefits of PXT3003 for Patients with Charcot-Marie-Tooth Disease Type 1A (‘CMT1A’)
April 20, 2021
Natalia, her family, and her growing team are laser-focused on finding a cure for CMT through aggressive fundraising through many channels.
March 13, 2021
The goal of the project is to evaluate years of collected patient-reported data and to correlate the findings to specific cohorts to include genotype, phenotype and clinical features.
March 12, 2021
We are excited to announce the launch of the Movement is Medicine™ Fitness Ambassador program, which will provide members weekly live classes that help increase their strength, balance, and overall fitness level.
March 11, 2021
Join our experts, Meg D'Elia & Brian Piper, PhD along with CMT patient panelists as they provide research, insight and personal experience on the topic of medical marijuana.
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