CMT Highlight Reel: How does CMT data drive research using GRIN?
March 15, 2023
Kenneth Raymond provides an overview of why sharing CMT symptoms in GRIN is so important!
News & Stories
News from the Hereditary Neuropathy Foundation: research updates, clinical trial progress, partnerships, and advocacy wins for the Charcot-Marie-Tooth community.
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Showing 73 to 84 of 153 in News
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Interested in driving CMT research forward? We need you!
March 8, 2023
Interested in driving CMT research forward? Watch our new 7-min GRIN Demo video explaining the steps in creating and updating your GRIN account!
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Charcot-Marie-Tooth Disease Symptoms
March 7, 2023
Charcot-Marie-Tooth disease is one of several hereditary neuropathies that affect the peripheral nervous system. CMT affects about 1 in every 2,500 people, making it one of the most common inherited neurological disorders worldwide.
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The Houliares Family Takes on CMT6
March 6, 2023
We have two choices in this world. We can sit back and do nothing, allowing this disease to happen, or we can go out and fight to make a difference.
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The CMT Genie
March 6, 2023
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HNF is Reshaping Drug Repurposing for CMT
March 6, 2023
HNF has partnered with Rarebase, a public benefit precision medicine company that has screened a large library of FDA approved small molecules to identify candidates for various types of CMT. Their tech-enabled drug discovery platform is called Function™. There are many published discoveries on the genetic cause of many types of CMT, including an understanding of the basic mechanism of disease and potential targets for FDA-approved drug repurposing. It is this understanding that allows HNF and Rarebase to target the genetic root cause of CMT.
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Webinar: Making Sense & Science of CMT Symptoms
March 3, 2023
How do we know if our symptoms are Charcot-Marie-Tooth Disease related, and how can we drive research to better answer this question?
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Hot off the Press: CMT Update
February 23, 2023
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Using Medical Cannabis for Managing Pain in Charcot-Marie-Tooth Disease
February 23, 2023
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Hereditary Neuropathy Foundation Launches New Website and Webinar to Support Charcot-Marie-Tooth Disease Research
February 10, 2023
HNF's website provides CMT community, academia, and biotech industry a hub for exploring research, clinical trials, vital resources, and ways to get involved.
