Want to help drive CMT research forward? Watch our new 7-minute GRIN demo video, which walks through the steps for creating and updating your GRIN account.

Key Points from the Demo

  • Account creation works best on a computer using Chrome, Edge, or Safari.
  • To get started, go to the HNF website and select “New to GRIN” on the GRIN registry page to access the request access form.
  • After completing the form, you will receive an email from HNF to verify your account.
  • The natural history study involves answering 60 CMT-related questions about how the disease affects you.
  • NIH-funded ClinGen surveys are also available and help researchers better understand signs and symptoms related to CMT.
  • The Sharing Center lets you create a link to share your surveys with others.
  • The Documents section is where you can upload your genetic test results.
  • Your dashboard displays all surveys, new and in-progress studies, and completed surveys, along with estimated completion time, number of questions, and a start button.
  • The General Information section lets you view and edit your basic contact information.
  • The Journal is for your personal notes, and the Messages section is where you will receive communications from HNF through the GRIN platform.

Ready to get involved? Join the GRIN registry today.