“Is this symptom related to CMT?”

This question is one of the most common among people living with CMT and their loved ones. Most people familiar with CMT know its most recognized symptoms, such as foot drop and hand weakness. However, many less-recognized symptoms can be just as disruptive to daily life, and they have not yet been fully studied or confirmed as CMT-related. The rarer the symptom, the more uncertain and isolated a person may feel.

What Participants Said

  • “This webinar was fantastic. I have felt alone in this land of CMT. I am going to look into testing. I am grateful.”, Judith
  • “Thank you so much. I am looking forward to hearing back from you and appreciate such a wonderful night full of information!”, Staci
  • “Just wanna say thank you all for doing this for us! Appreciate this!”, Traci
  • “I LOVE these zoom CMT meetings and I thank you for all you do for us!”, Leanne
  • “Great job on the webinar last night! Very informative, I am sure it was valuable for all participants!”, Peter

Watch the Webinar

How do we know if our symptoms are CMT-related, and how can we help drive research to better answer that question? Watch HNF’s “Making Sense & Science of CMT Symptoms” webinar to learn how you can help advance research for Charcot-Marie-Tooth disease. You can also join the GRIN Registry to contribute your experience to ongoing research.