The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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September 19, 2012
The women: Lenka Vodicka of California, Michele Kekac of Connecticut, Esther Lejbovitz of New York and Nicole Burggraaf of Cananda, post to the site whenever they feel they have something to share.
September 6, 2012
As a little girl, growing up with Charcot-Marie-Tooth Disease (CMT), Wendy Lowe spent a lot of time in the hospital.
August 15, 2012
Thanks to the American Academy of Neurology (AAN), obtaining the latest information on neurological conditions is a cinch.
August 15, 2012
Read about parental concerns regarding physical therapies for children with Charcot-Marie-Tooth Disease.
July 12, 2012
Team CMT - Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.
July 12, 2012
A volunteer fire fighter for eight years, Alyson has managed to stay active, in spite of her CMT symptoms.
July 12, 2012
In an effort to connect with and support other people who have Charcot-Marie-Tooth, Nick developed his own website.
June 15, 2012
Almost 10 now, Erin was diagnosed Charcot-Marie-Tooth (CMT) four years ago. Over those four years there have been numerous trips to Boston for treatment and surgery.
June 13, 2012
When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is an honor and I am humbled. It is the achievement,” she explains, “of a dream that seemed out of reach.”
June 11, 2012
The Hereditary Neuropathy Foundation (HNF) is thrilled to announce the completion of the film, “Bernadette.”
May 13, 2012
“An awesome event” is how members of Team CMT described the 2012 TD Bank NY Five Boro Bike Tour, held on Sunday, May 6th
May 4, 2012
Thanks to collaborative efforts of the University of Michigan Consortium for Stem Cell Therapies and molecular research scientists at Michigan-based Genesis Genetics, scientists are one step closer to understanding Charcot-Marie-Tooth disease.
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