The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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February 21, 2013
HNF has added a new component to its successful School Outreach Program, aimed at deepening students’ understanding of disability as a difference that can be embraced as one part of a beautiful whole.
February 10, 2013
On Wednesday, January 29th, jewelry designer jaKe & anna will be sponsoring the NYC premiere of BERNADETTE at the old time soho Angelika Film Center in Manhattan. 50% of sales from this viewing will go to the Hereditary Neuropathy Foundation (HNF).
February 1, 2013
Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration.
January 11, 2013
As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers.
January 9, 2013
Big news is happening on a cellular level at Cedars-Sinai Medical Center’s Regenerative Medicine Institute in Los Angeles, CA. Robert H. Baloh, MD PhD, Director of Neuromuscular Medicine, in conjunction with Patrick D. Lyden, MD Neurology Dept. Chair, and Clive Svendsen, PhD, Institute Director, are studying disorders that start in nerve cells.
December 12, 2012
On November 1, CMS announced in the 2013 Medicare Physician Fee Schedule that it will severely reduce payment for EMG and NCS.
December 3, 2012
These days, inspired by his love of family he runs on behalf of three generations of women with Charcot-Marie-Tooth disease
October 25, 2012
Together, she and Carol answered questions from young and old alike about Charcot-Marie-Tooth (CMT). “The festival was such a nice opportunity to let kids know about Arlene and raise awareness about CMT,”
October 25, 2012
Coming in March 2013, the sequel to parent and teacher favorite, Arlene On the Scene will be on the shelves!
October 4, 2012
While running the Philly Half-Marathon, Joe will be raising funds for the Hereditary Neuropathy Foundation (HNF). So far, he has raised $ 1105.00 through private donations and hopes to gain corporate sponsors as well.
September 24, 2012
Arrangements are being made to allow HNF to invite families impacted by Charcot-Marie-Tooth for a weekend, in 2013, to Camp Twin Lakes.
September 19, 2012
The Hereditary Neuropathy Foundation (HNF) “Spin/Yoga for a Cure” will be held Thursday, September 27, 2012.
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