Team CMT leader finishes second at Boston Marathon
April 23, 2012
Congratulations to Chris Wodke, manager of Team CMT, who placed second in the Mobility Impaired Division of the 2012 Boston Marathon on April 16!
News & Stories
The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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Di Billick Runs 10k for Team CMT
April 20, 2012
Di also did something special for Team CMT. “I took my body to the absolute limit yesterday, Sunday, April 15th, in honor of Chris Wodke's Boston Marathon run which took place the next day. I walked (no jogging or running) in one direction and had my husband pick me up when I couldn't go any further.”
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Coaching Athletes with Charcot-Marie-Tooth
April 17, 2012
Morgan Johnson doesn’t have Charcot-Marie-Tooth, but she is quickly learning everything she can about it.
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CMT Research Update: DNA Methylation and Exercise
March 31, 2012
An article in the March 7, 2012 edition of Cell Metabolism Journal supports the benefits of exercise, suggesting possible enhanced effects of combined exercise and drug treatment in patients with CMT.
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Personal Profile: Di Billick--Actress, Model, Inspiration
March 26, 2012
“I call Charcot-Marie-Tooth a blind disease because you can’t see it. People say I look fine and can’t understand that I have a problem.
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Personal Stories: Barb Vonada, triathlete, veteran and more!
March 26, 2012
Recently, the 42 year old mom of three joined Team CMT- Richmond hoping to spread awareness and raise funds for research and a cure.
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Expert Q and A: Orthopedic Surgeon, Dr. Glenn Pfeffer
March 10, 2012
Learn more from orthopedic surgeon Glenn Pfeffer, MD about surgery and CMT patients.
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A Bad Break...When You Have Charcot-Marie-Tooth
March 9, 2012
Dr. Sheskier says that with CMT and other neurogenic diseases, the danger is that the patient is fooled into thinking his or her bone is fully healed when it is not.
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Medical Fields Related to Surgery
March 9, 2012
Learn more about the medical fields related to surgery.
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Spotlight: Bike New York Riders
February 24, 2012
On Sunday, May 5, 2013 among the crowd of 32,000 cyclists expected to participate in New York City’s TD Five Boro Bike Tour will be two busy New Yorkers cycling to raise awareness of and funds for Charcot-Marie-Tooth.
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Spotlight on the Mattheiss Family
February 24, 2012
Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community.
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Social Security Programs for Those with Charcot-Marie-Tooth
January 31, 2012
Many people think social security benefits are only for the elderly or retired, but social security benefits are also available for people who meet the government’s definition of disability.
