Mobi Mat
January 11, 2017
Join Brett Gray & Bernadette Scarduzio in their mission to bring accessibility to beaches across the US!
News & Stories
The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
No matches for .
Showing 241 to 252 of 314
-
-
Thermapool Therapy
January 11, 2017
Therma Pool therapy session and demo as they discuss the benefits of aquatic exercise for CMT and more!
-
How Yoga Can Help Charcot-Marie-Tooth Patients
January 11, 2017
Could yoga help CMT patients manage their symptoms?
-
Physical Therapy For Children With Charcot-Marie-Tooth Disease
January 10, 2017
Children with CMT who are struggling with the activities of daily living may greatly benefit from a physical therapy program.
-
Are You a Patient With CMT 1A? New Clinical Trial Opportunity Available For You!
October 31, 2016
For the first time investigators are looking for patients to participate in a pivotal Phase 3 clinical trial of Pharnext’s lead investigational pleodrug, PXT-3003 for the potential treatment of Charcot-Marie-Tooth Disease Type 1A (CMT1A).
-
How Alter-g Works
August 12, 2016
Using "unweighting technology", the Alter-G makes you feel up to 80 percent lighter, so if you weigh 100 pounds, you could feel as light as 20 pounds on the treadmill.
-
Pharnext Opens First U.S. Study Site For Its PLEO-CMT International Pivotal Phase 3 Trial In Charcot-Marie-Tooth Disease Type 1A
April 25, 2016
French pharmaceutical company Pharnext announced the opening of the first U.S. trial site for its PLEO-CMT pivotal Phase 3 clinical trial of its lead pleodrug PXT-3003 in Charcot-Marie-Tooth Disease Type 1A (CMT1A).
-
How Meditation Can Benefit Charcot-Marie-Tooth Patients
January 5, 2016
Meditation is an ancient mind and body practice that can offer many benefits for those living with CMT and INs.
-
Global Registry For Inherited Neuropathies: Your Questions Answered
November 12, 2015
Why are we asking you to join our registry? It’s simple. Without you, researchers won’t have the essential patient information to develop the drugs, gene therapy, and clinical trials for Charcot-Marie-Tooth and other inherited neuropathies. This is why the Hereditary Neuropathy Foundation (HNF) created the Global Registry for Inherited Neuropathies (GRIN). The registry collects the historical, clinical, and genetic information on patients diagnosed with the various forms of inherited neuropathies to help advance therapy development for these debilitating disorders. We understand there may be some hesitation joining our registry. To help mitigate any concerns, we’ve have the answers to your most common questions.
-
US Senator Kirsten Gillibrand Recognizes Charcot-Marie-Tooth Awareness Month
September 25, 2015
Senator Gillibrand has graciously shown her recognition of Charcot-Marie-Tooth Awareness Month by sharing a letter about HNF’s mission, the importance of greater awareness, and the need for increased research and clinical trials
-
A Bi-Directional, Translational Model of Resistance-Type Exercise Training in the Management of Charcot-Marie-Tooth (CMT) Disease
September 10, 2015
A team of government researchers, including Dr. Robert Chetlin, have collaborated with Dr. Michael Sereda and Dr. Klaus Nave of the Max Planck Institute for Experimental Medicine (MPI) to successfully secure the CMT1A transgenic rat from MPI and establish a colony in the United States.
-
Global Registry For Inherited Neuropathies: The Quest For A Genetic Diagnosis
September 1, 2015
The Hereditary Neuropathy Foundation (HNF) and Hannah's Hope Fund (HHF) have partnered together to create the Global Registry For Inherited Neuropathies (GRIN).
