Physical therapists (PTs) develop treatment programs to promote the ability to move, reduce pain, restore function, and prevent disability. Children with CMT who are struggling with activities of daily living may greatly benefit from a physical therapy program.

Is physical therapy right for your child? Dr. Sharon DeMuth, Adjunct Associate Professor of Clinical Physical Therapy at the University of Southern California, Los Angeles, shares helpful guidance on physical therapy for children with CMT.

Coordinate care across all therapists

Depending on the child’s age, other therapies will overlap with a physical therapy program, such as Occupational Therapy (OT). Coordinating all efforts with your healthcare providers helps ensure the best outcome for your child.

Monitor regularly, because children change quickly

With a chronic, progressive condition like CMT, symptom progression needs to be monitored on a regular basis. Developing a strategy with your healthcare providers that aligns with the child’s current condition helps determine when PT is appropriate.

Find healthcare professionals experienced with children

Healthcare providers who are comfortable working with children will encourage their participation in a PT program. Dr. DeMuth advises parents to step back from the role of “therapy enforcer.” Children are often more receptive to guidance from adults other than their parents.

Tap into their favorite activity

Connecting therapy to a child’s favorite activity can be a powerful motivator. When a specific device or exercise lets them keep enjoying what they love, participation tends to follow.

Meet your child where they are

Always highlight what your child can do. Encourage them to advocate for their own health. Taking an active role in their wellbeing can be empowering.

Address emotional challenges through open conversation

Keeping a dialogue with your child helps identify where resistance to therapy is coming from. What has changed? What is worrying them? Role-playing can be another helpful way to surface feelings. For example, ask what they would say if someone asked why they wear braces. Share any changes with the therapist so therapy can be adjusted to meet your child’s emotional needs.

Keep a two-way conversation going with the therapist

It is appropriate to ask your therapist to explain different therapies and to suggest resources for further reading. If a therapist is reluctant to discuss treatment options, consider seeking another provider.

Build in breaks

Breaks from therapy are important for everyone. Dr. DeMuth notes that research suggests intense, short bursts of therapy may be more effective than ongoing sessions three times a week for years. If a child appears stable and is not regressing, it is reasonable to ease up. Therapy can always be revisited if a problem arises or a growth spurt occurs.