University of North Carolina Becomes New Center of Excellence
July 16, 2020
Introducing Dr. Rebecca Traub, University of North Carolina
News & Stories
The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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HEREDITARY NEUROPATHY FOUNDATION (HNF) IS HERE FOR YOU DURING THIS TIME OF UNCERTAINTY
June 22, 2020
HNF team has been working tirelessly to produce content and programs to help the CMT Community during this time of uncertainty.
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Microcirculation
June 11, 2020
Improve blood flow and learn about this holistic approach to increase oxygen and decrease toxins.
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Press Release: Pharnext provides regulatory and clinical update on PXT3003 Phase III study for the treatment of Charcot-Marie-Tooth Type 1A
June 10, 2020
US Food and Drug Administration has agreed with Pharnext and provided clear guidance on the regulatory pathway to approval for PXT3003, including key design elements of a single pivotal Phase III study
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HNF’s Newest Center of Excellence: Austin Neuromuscular Center, Dr. Yessar Hussain
June 10, 2020
Introducing Yessar Hussain
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Painting By Mouth, Kaileen Selig
June 5, 2020
CMT doesn't stop artist, Kaileen Selig from painting beautiful pieces using her mouth.
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Meet Dr. Nivedita Jerath, MD, MS - AdventHealth Neuroscience Institute Center of Excellence
April 13, 2020
The AdventHealth Neuroscience Institute is fully committed to patient excellence, care, and exceeding expectations. Patients will experience a team that is superb beyond expectations. If they are coming from far, they will be catered to with our destination team. When they arrive, they will experience an environment full of love, kindness, friendliness, and softness. They will observe an amazing facility, receive an in-depth physician evaluation, electrodiagnostic testing, genetic testing, and opportunities to get all the multidisciplinary therapies that they need. They will also be involved in any research studies that we may have.
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Work from home NTI @Home
April 11, 2020
HNF is thrilled to present a new webinar with NTI@Home, a non-profit dedicated to providing people with disabilities and their caregivers with free virtual job training and placement
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Cannabis & CMT
March 4, 2020
An insightful CMT-Connect Webinar discussing CBD and Cannabis for CMT symptoms
