News & Stories

The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.

Showing 205 to 216 of 314

10yo Addie sings her version of Try by Pink to raise awareness of CMT

January 20, 2020

Addie rewrote Try by Pink into a song about her disease and recorded it to raise awareness.
Dear Kristin,

January 9, 2020

My husband now says he doesn’t want children because of the disease. I am devastated. I always dreamed of a big family.
EmBRACE It Podcast with Lainie Ishbia and Estela Lugo

January 9, 2020

We want our CMT viewers and listeners to feel like they can relate to us, and that it’s perfectly okay to be imperfect!
Catching Up with Team CMT Member, Gabrielle Blakey

January 7, 2020

I felt like “The Little Engine That Could.” I decided that day that CMT does not define me, it’s just a part of me. Read Gabrielle's inspiring story here!
Marvin, my Service Dog

December 23, 2019

Now thanks to Marvin, my Canine Companions for IndependenceⓇ service dog, my life is so much fuller.
A Successful Movement is Medicine™ Summit

December 2, 2019

“Like meeting family you never knew you had, but always wanted.”
CMT&Me Study

November 18, 2019

There’s been little research to date into how CMT affects the lives of patients...
PNS, It’s A Global Effort

November 7, 2019

Where do the top CMT researchers in the world unite to share leading-edge research? The Peripheral Nerve Society (PNS) meeting!
HNF Presents Research Findings at Three Prestigious Conferences

November 5, 2019

Read more about the research findings presented at these conferences.
Meet HNF’s Newest Team CMT Member, Lisa Mormann

November 1, 2019

"I may have Charcot-Marie-Tooth (CMT), but it does not have me."
Cannabis & CMT Webinar Overview

October 31, 2019

CMT-Connect hosted its first webinar on the popular topic of Cannabis this past April.
Swimming Towards Success, Jamal Hill

October 30, 2019

The Los Angeles native was a natural born swimmer, and has continued his aquatics career throughout his life.