CMT Thrive Summit, Dating with a Disability
March 10, 2022
Dating, relationships, and intimacy play significant roles in the human experience.
News & Stories
The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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A study of the correlation between gait abnormalities, activity monitoring parameters, CMTPedS and a biomarker in children with Charcot-Marie-Tooth disease.
March 1, 2022
A study of the correlation between gait abnormalities, activity monitoring parameters, CMTPedS and a biomarker in children with Charcot-Marie-Tooth disease.
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EmBrace It Podcast: Episode #5 Love & Disability, 5 Red Flags to Avoid
February 10, 2022
Finding love can be challenging and even more so when you have a disability. In this episode, Lainie & Estela share their thoughts on a listener’s online dating questions as well as 5 RED Flags to steer clear of when looking for a loving partner.
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Adaptive Driving Tour with Bernadette
February 7, 2022
Learn more about the ins and outs of Adaptive Driving with Bernadette Scarduzio.
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Know Your Disability Rights
January 12, 2022
What are our disability rights at work, school & society in general? When it comes to CMT, learning our rights can seem like a daunting and intimidating endeavor.
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CMT & Canine Companions
January 11, 2022
Learn about how Canine Companions paired these best friends together and how Marvin makes Diana's life easier and sweeter.
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Applied Therapeutics Announces Initiation of Registrational Phase 2/3 Study of AT-007 in SORD Deficiency
December 16, 2021
Press Release
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Applied Therapeutics Reports Biomarker Data from Pilot Trial of AT-007 in SORD Deficiency
October 25, 2021
Press release
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CMT Family Planning Webinar - Part 1: IVF & CMT
October 19, 2021
When it comes to family planning & CMT, there are ever-growing concerns, questions, and scientific developments that can seem overwhelming and have us questioning, “Where do we start?”. The Hereditary Neuropathy Foundation aims to shed light on this vast topic with a 3-Part Family Planning Series.
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Alan Jackson Reveals He Has Charcot-Marie-Tooth, CMT
October 19, 2021
Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine contacted HNF for more information about CMT. HNF Founder, Allison Moore was quoted in the article:
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HNF collaborates with Rarebase on a Drug Discovery Platform to develop treatments for Charcot-Marie-Tooth (CMT)
October 12, 2021
HNF collaborates with Rarebase on a Drug Discovery Platform to develop treatments for Charcot-Marie-Tooth (CMT)
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Accessible College: NEW CMT-Connect Webinar!
August 12, 2021
HNF is proud to have teamed up with Accessible College to help families and individuals with an introduction to the skills and tools needed to ensure a successful transition to and through higher education.
