Empowering Kids with CMT
May 12, 2022
What are the key ingredients and practices for raising empowered kids with CMT? Dr. Ficchi is a licensed therapist with specialty areas of focus on individuals with disabilities.
News & Stories
The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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Meet Bosco
May 10, 2022
Meet Bosco, Zach Houliares service dog. Learn more about how service dogs can help those living with CMT!
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Pharnext Announces On-Schedule Completion of Patient Enrollment in its Pivotal Phase III Trial of PXT3003, the PREMIER Trial, for the Treatment of Charcot-Marie-Tooth Disease Type 1A (CMT1A)
April 29, 2022
Pharnext Announces On-Schedule Completion of Patient Enrollment in its Pivotal Phase III Trial of PXT3003, the PREMIER Trial, for the Treatment of Charcot-Marie-Tooth Disease Type 1A (CMT1A)
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Elementary & Middle School Accommodations for CMT
April 12, 2022
When it comes to education & CMT there are many ways we can advocate for and empower our children and young adults.
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Pediatric Care & Pain
April 12, 2022
What are the key CMT milestones, markers, and interventional therapies to consider when raising a child with CMT?
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CMT THRIVE Summit Webinar, Wheel Around the World
April 12, 2022
Wheel The World is an accessibility booking platform for people with disabilities to book hotels and tours confidently.
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CMT THRIVE Webinar, Cannabis & Neuropathy Webinar
April 12, 2022
Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.
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3 New CMT Drug Development Projects
April 11, 2022
HNF Announces 3 New Drug Partnerships & Pathways Targeting Multiple Forms of CMT.
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Adaptive Driving for CMT
April 7, 2022
Join us for a crash course on adaptive driving from evaluations, equipment, and certification!
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Accessible CMT Home Tour
March 12, 2022
What does an accessible home look like? Join us for this fun and CMT-friendly home tour complete with their favorite spaces, tips and products
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Connecting with Inclusive Employers, Inclusively Interview & Demo
March 12, 2022
Inclusively is an employment platform for job seekers with disabilities and goes beyond a candidate’s background, matching their experience, skills, and accommodations needed to succeed in the role.
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What is SORD Deficiency: Part 2
March 11, 2022
Join us for this webinar as we learn more about Sorbitol Dehydrogenase (SORD) Deficiency
