Battersby Lab Donor Story: Fighter Moms Donate to Vital Research into Mitochondrial Diseases
October 4, 2022
Battersby Lab Donor Story Fighter Moms Donate to Vital Research into Mitochondrial Diseases
News & Stories
The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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The Key Role CMT Patients Play in Research
September 16, 2022
Without your participation, researchers won’t have the essential patient information to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth and other Inherited Neuropathies. In addition, as GRIN grows, we gain greater insights from you as patients to help accelerate therapies for Charcot-Marie-Tooth (CMT) and Inherited Neuropathies.
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Applying for Social Security Disability 101
September 13, 2022
The Social Security Administration (SSA) doesn’t make it easy for those with CMT to get the Social Security Disability Benefits they deserve.
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What is SORD Deficiency?
September 11, 2022
Could you be 1 of the estimated 3300 patients in the US with the gene causing SORD Deficiency?
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Real Talk with Joey Nicoletti
September 10, 2022
Joey's family has a history of Charcot-Marie-Tooth, and he decided to get tested at the end of 2019. He learned at the age of 23 that he had CMT-1B and needed to adapt his way of life so that he could continue performing.
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How to get genetic Testing: The CMT Genie
September 10, 2022
Trying to get a genetic confirmation of CMT can be overwhelming, and you might not have access to healthcare providers who are familiar with all the choices out there.
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SORD INSPIRE Phase III Clinical Trial
September 9, 2022
HNF Partner Applied Therapeutics is Currently Enrolling SORD Deficiency Patients for the INSPIRE Phase III Clinical Trial
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The Future of CMT Research
August 13, 2022
Hear from Allison Moore, Founder/CEO of the Hereditary Neuropathy Foundation about the past, present and future or research.
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Setting Healthy Boundaries
July 12, 2022
Setting healthy boundaries is part of self-care and self-respect. It is being assertive without the need to be aggressive. Healthy boundaries can help us define our uniqueness and our core. Boundaries are not just about getting what we want. It's about getting to live our lives on our own terms.
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Moving Away From Perfectionism
June 8, 2022
The American Psychological Association (APA) understands perfectionism as the tendency to expect flawless performance from others or oneself over what the situation requires.
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Meet Michael Watkins, Team CMT Member
May 31, 2022
Michael Watkins will participate for the 2nd time in the Leadville Trail 100 MTB race on August 14, 2022, in Leadville, CO.
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Caregiver and CMT
May 12, 2022
We can’t stop CMT's impact on someone we care about. But there is a great deal we can do to take responsibility for our well-being.
