The Houliares Family Takes on CMT6
March 6, 2023
We have two choices in this world. We can sit back and do nothing, allowing this disease to happen, or we can go out and fight to make a difference.
News & Stories
The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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The CMT Genie
March 6, 2023
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HNF is Reshaping Drug Repurposing for CMT
March 6, 2023
HNF has partnered with Rarebase, a public benefit precision medicine company that has screened a large library of FDA approved small molecules to identify candidates for various types of CMT. Their tech-enabled drug discovery platform is called Function™. There are many published discoveries on the genetic cause of many types of CMT, including an understanding of the basic mechanism of disease and potential targets for FDA-approved drug repurposing. It is this understanding that allows HNF and Rarebase to target the genetic root cause of CMT.
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Webinar: Making Sense & Science of CMT Symptoms
March 3, 2023
How do we know if our symptoms are Charcot-Marie-Tooth Disease related, and how can we drive research to better answer this question?
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Hot off the Press: CMT Update
February 23, 2023
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Using Medical Cannabis for Managing Pain in Charcot-Marie-Tooth Disease
February 23, 2023
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Hereditary Neuropathy Foundation Launches New Website and Webinar to Support Charcot-Marie-Tooth Disease Research
February 10, 2023
HNF's website provides CMT community, academia, and biotech industry a hub for exploring research, clinical trials, vital resources, and ways to get involved.
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Run With Purpose. Give With Heart.
December 28, 2022
On November 5, 2023 - Runners will take on the marathon to support Charcot-Marie-Tooth Disease research.
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Can Existing Drugs Treat CMT?
October 13, 2022
HNF, in partnership with Rarebase, is leading the charge in the first-ever research initiative to tackle multiple types of CMT in one project using its tech-enabled drug discovery platform called "Function."
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SORD Webinar - Part 2 - Clinical Trial Update
October 9, 2022
Clinical Trial Update for SORD Deficiency - Applied Therapeutics - Dr. Shoshana Shendelman
