The Key Role CMT Patients Play in Research
Without your participation, researchers won’t have the essential patient information to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth and other Inherited Neuropathies. In addition, as GRIN grows, we gain greater insights from you as patients to help accelerate therapies for Charcot-Marie-Tooth (CMT) and Inherited Neuropathies.
Presented by Joy Aldrich, HNF GRIN Patient Registry Coordinator.
Patient participation is essential to CMT research. Without your involvement, researchers lack the real-world patient data needed to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth disease (CMT) and other inherited neuropathies.
The GRIN Patient Registry is HNF’s central tool for collecting that data. As the registry grows, it gives researchers greater insight into how CMT and related conditions affect patients day to day, helping to accelerate the development of new therapies.
Every profile you complete and every survey you answer brings the research community one step closer to effective treatments. Join GRIN today and add your voice to the effort.