HNF Hears You
December 22, 2018
The HNF 2018 Patient-Centered Behavioral Health Summit was one-of-kind: HNF launched a new curriculum.
News & Stories
CMT events from the Hereditary Neuropathy Foundation: patient summits, webinars, fundraisers, and community gatherings for the Charcot-Marie-Tooth community.
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Showing 61 to 72 of 79 in Events
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Voice of the Patient Weekend: Expanding the Science of Patient Input in Drug Development and Tapping into Personal Potential
September 25, 2018
The time for our community to shine is coming as we prepare for the Patient-Focused Drug-Development Meeting on September 28, 2018!
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Jamal Hill ~ Paralympic Swimmer
August 11, 2018
We spoke with Paralympic swimmer, Jamal Hill about how he got started swimming, what it takes to make it to the Paralympics, his CMT journey and much more!
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Mobi Mat
January 11, 2017
Join Brett Gray & Bernadette Scarduzio in their mission to bring accessibility to beaches across the US!
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Thermapool Therapy
January 11, 2017
Therma Pool therapy session and demo as they discuss the benefits of aquatic exercise for CMT and more!
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NYC bike ride to highlight rare neurological disorder
February 25, 2013
Five-year-old Aiden Kelly was diagnosed with Charcot-Marie-Tooth Disease (CMT) last April, but for the Wellesley boy, the impact of this rare disease has only revealed itself gradually.
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Join Us for a Private Screening of Bernadette: January 29th in New York City
February 10, 2013
On Wednesday, January 29th, jewelry designer jaKe & anna will be sponsoring the NYC premiere of BERNADETTE at the old time soho Angelika Film Center in Manhattan. 50% of sales from this viewing will go to the Hereditary Neuropathy Foundation (HNF).
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Personal Profile: Estela Lugo, Designing Décor
January 11, 2013
As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers.
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Joe Torello, Music Man
October 4, 2012
While running the Philly Half-Marathon, Joe will be raising funds for the Hereditary Neuropathy Foundation (HNF). So far, he has raised $ 1105.00 through private donations and hopes to gain corporate sponsors as well.
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Camp CMT: Great Opportunity for Children with CMT!
September 24, 2012
Arrangements are being made to allow HNF to invite families impacted by Charcot-Marie-Tooth for a weekend, in 2013, to Camp Twin Lakes.
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Spin / Yoga for a Cure: Thursday September 27th Hot Ryde Roslyn, New York
September 19, 2012
The Hereditary Neuropathy Foundation (HNF) “Spin/Yoga for a Cure” will be held Thursday, September 27, 2012.
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Team CMT: Monthly Family 5K Fun Run
July 12, 2012
Team CMT - Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.
