CMT Highlight Reel: How does CMT data drive research using GRIN?
March 15, 2023
Kenneth Raymond provides an overview of why sharing CMT symptoms in GRIN is so important!
News & Stories
CMT events from the Hereditary Neuropathy Foundation: patient summits, webinars, fundraisers, and community gatherings for the Charcot-Marie-Tooth community.
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Showing 25 to 36 of 79 in Events
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Bike for CMT Research | TD Bank Five Boro Bike Tour
March 7, 2023
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HNF is Reshaping Drug Repurposing for CMT
March 6, 2023
HNF has partnered with Rarebase, a public benefit precision medicine company that has screened a large library of FDA approved small molecules to identify candidates for various types of CMT. Their tech-enabled drug discovery platform is called Function™. There are many published discoveries on the genetic cause of many types of CMT, including an understanding of the basic mechanism of disease and potential targets for FDA-approved drug repurposing. It is this understanding that allows HNF and Rarebase to target the genetic root cause of CMT.
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Webinar: Making Sense & Science of CMT Symptoms
March 3, 2023
How do we know if our symptoms are Charcot-Marie-Tooth Disease related, and how can we drive research to better answer this question?
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Run With Purpose. Give With Heart.
December 28, 2022
On November 5, 2023 - Runners will take on the marathon to support Charcot-Marie-Tooth Disease research.
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Can Existing Drugs Treat CMT?
October 13, 2022
HNF, in partnership with Rarebase, is leading the charge in the first-ever research initiative to tackle multiple types of CMT in one project using its tech-enabled drug discovery platform called "Function."
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SORD Webinar - Part 2 - Clinical Trial Update
October 9, 2022
Clinical Trial Update for SORD Deficiency - Applied Therapeutics - Dr. Shoshana Shendelman
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The Key Role CMT Patients Play in Research
September 16, 2022
Without your participation, researchers won’t have the essential patient information to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth and other Inherited Neuropathies. In addition, as GRIN grows, we gain greater insights from you as patients to help accelerate therapies for Charcot-Marie-Tooth (CMT) and Inherited Neuropathies.
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What is SORD Deficiency?
September 11, 2022
Could you be 1 of the estimated 3300 patients in the US with the gene causing SORD Deficiency?
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Real Talk with Joey Nicoletti
September 10, 2022
Joey's family has a history of Charcot-Marie-Tooth, and he decided to get tested at the end of 2019. He learned at the age of 23 that he had CMT-1B and needed to adapt his way of life so that he could continue performing.
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How to get genetic Testing: The CMT Genie
September 10, 2022
Trying to get a genetic confirmation of CMT can be overwhelming, and you might not have access to healthcare providers who are familiar with all the choices out there.
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The Future of CMT Research
August 13, 2022
Hear from Allison Moore, Founder/CEO of the Hereditary Neuropathy Foundation about the past, present and future or research.
