More Magazine features story on Charcot-Marie-Tooth
January 27, 2012
A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth.
News & Stories
The latest from HNF: research updates, patient stories, advocacy wins, events, and CMT community news.
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Showing 301 to 312 of 314
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Holistic Wellness, Occupational Therapy and CMT
January 17, 2012
OT’s can help find holistic therapies and will collaborate with healthcare professionals to facilitate treatment.
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Charcot-Marie-Tooth Awareness: In the News!
December 15, 2011
NBC10 in Philadelphia featured a story on Bernadette Scarduzio, one of HNF's most prominent partners who is the subject of an upcoming documentary, Bernadette.
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CMT Research Update: HNF-Funded Projects
December 6, 2011
We are currently funding two very important research projects, one for CMT type 1 and the other for CMT type 2A.
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Exercise and Activity Training for Patients with CMT: Application of the Exercise is Medicine Mode
November 30, 2011
The American College of Sports Medicine hosted the First World Congress for the “Exercise Is Medicine” (EIM) initiative in Baltimore, Maryland. The EIM enterprise is dedicated to improving health, wellness, and quality-of-life through regular physical activity and healthy behaviors.
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Benefits of Exercise for Kids with CMT
November 30, 2011
Children with CMT should be active for a variety of reasons. Learn more about the benefits of exercise for kids.
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Knowledge is Power: Overview of Special Education Law
November 30, 2011
Strong advocacy for education is often needed to ensure your child receives appropriate accommodations and services for academic success.
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Be True to Yourself--Living with Charcot-Marie-Tooth
November 28, 2011
This CMT patient has worked with thousands of CMT families and draws her knowledge from past and present experiences.
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CMT Awareness Month--Advocate!
November 21, 2011
New York state legislature passed a resolution memorializing NY Governor Andrew Cuomo to declare this September as CMT Awareness month in the state of New York.
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Running Marathons to Raise Awareness of Charcot-Marie-Tooth
November 17, 2011
"America's Friendliest Marathon," held in Richmond, VA this past weekend, included some important friends of the Hereditary Neuropathy Foundation who ran to raise awareness of Charcot-Marie-Tooth and to generate funds for research to find a cure.
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Podiatry Meeting in NYC
September 28, 2011
Tuesday, September 27th was a beautiful evening where the New York State Podiatric Medical Association joined the Hereditary Neuropathy Foundation in celebration of Charcot-Marie-Tooth Awareness Month.
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AANEM conference
September 17, 2011
Hereditary Neuropathy Foundation sponsored a course on CMT as part of the annual meeting of the American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM).
