Exciting News For The CMT Patient Community
December 20, 2018
Exciting news for the CMT patient community with the first potential treatment ever!
News & Stories
News from the Hereditary Neuropathy Foundation: research updates, clinical trial progress, partnerships, and advocacy wins for the Charcot-Marie-Tooth community.
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Showing 121 to 132 of 153 in News
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HNF & Athena Diagnostics Form Strategic Alliance
December 17, 2018
They will collaborate on research and provide access to genetic testing for CMT.
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HNF Launches Online Clinical Study
December 13, 2018
HNF launches GRIN with 4 online clinical studies that are important as we continue with our therapy development pipelines.
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A Letter From HNF's CEO/Founder
December 10, 2018
2018 was a pivotal year for the Hereditary Neuropathy Foundation (HNF) and the entire Charcot-MarieTooth (CMT) Community.
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HNF Partners with True Reply, the Future of Data Collection: Voice Activated Technology (VAT)
December 8, 2018
True Reply's Voice Activated Technology is an accessible and innovative new platform that captures the patient’s experience with CMT in their own words.
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HNF to Host Educational CMT Symposium at AANEM Annual Conference
October 8, 2018
HNF to host an educational CMT symposium at AANEM's Annual Conference October 10-13th in Washington, D.C.
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HNF Presents at RARE Patient Advocacy Summit Hosted by Global Genes®
October 1, 2018
The Annual RARE Patient Advocacy Summit, hosted by Global Genes, is in its seventh year and will take place on October 3-4 at the Hotel Irvine in Irvine, California.
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HNF Joins Chronic Pain Advocacy Groups To Protect Access To Pain Medications
January 25, 2018
HNF proudly stands with the chronic pain community in protecting access to therapies and treatments.
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Pharnext’s lead PLEODRUG © for treatment of CMT1
November 9, 2017
Pharnext completed patient enrollment for the international Phase 3 clinical trial of PXT3003, Pharnext’s lead PLEODRUG ©, for treatment of CMT1A.
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Amazing Opportunity: AntiGravity Exercise Study in New York City!
July 31, 2017
Join this exclusive research study for people with CMT featuring the AlterG anti-gravity treadmill.
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Are You a Patient With CMT 1A? New Clinical Trial Opportunity Available For You!
October 31, 2016
For the first time investigators are looking for patients to participate in a pivotal Phase 3 clinical trial of Pharnext’s lead investigational pleodrug, PXT-3003 for the potential treatment of Charcot-Marie-Tooth Disease Type 1A (CMT1A).
