Patient Voices
There is no substitute for hearing it firsthand. At the HNF CMT Summit, members of the community sat down to share what living with Charcot-Marie-Tooth disease really means, in their own words. These are their stories.
Melissa Amalfitano
These hands were never the limitation. They were the miracle.
Reagan Warren
CMT took her father. She is determined it will not take her future.
Alana Kohler
Living with CMT is like walking through life in shoes two sizes too big.
Lindsey Flynt
What if the only thing standing between your child and a future was time?
Natalia Salejko
So what is your medical background? I replied, a mother.
Every story is one more reason to keep pushing for treatments and a cure. You can add your own voice to the search by joining the GRIN patient registry, or read more of the community at Faces of CMT.