News from the Hereditary Neuropathy Foundation: research updates, clinical trial progress, partnerships, and advocacy wins for the Charcot-Marie-Tooth community.
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Showing 97 to 108 of 153 in News
March 1, 2022
A study of the correlation between gait abnormalities, activity monitoring parameters, CMTPedS and a biomarker in children with Charcot-Marie-Tooth disease.
December 16, 2021
Press Release
October 25, 2021
Press release
October 19, 2021
Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine contacted HNF for more information about CMT. HNF Founder, Allison Moore was quoted in the article:
October 12, 2021
HNF collaborates with Rarebase on a Drug Discovery Platform to develop treatments for Charcot-Marie-Tooth (CMT)
May 6, 2021
New Study Measures Progression of CMT1A Nerve Impairment
May 5, 2021
New Study Measures Progression of CMT1A Nerve Impairment
April 28, 2021
Study Shows Sustained Benefits of PXT3003 for Patients with Charcot-Marie-Tooth Disease Type 1A (‘CMT1A’)
March 13, 2021
The goal of the project is to evaluate years of collected patient-reported data and to correlate the findings to specific cohorts to include genotype, phenotype and clinical features.
March 11, 2021
Research from a mutation on the SORD gene
March 11, 2021
Community connected with the TRPV4 HN team at Johns Hopkins
February 23, 2021
The PREMIER Trial, which is being conducted in patients with mild-to-moderate CMT1A, is expected to enroll approximately 350 subjects ages 16-65 with a confirmed genetic diagnosis of CMT1A.
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