News & Stories

2025 CMT Roadshow Coming to a City Near You?

March 26, 2024

Do you want to make a difference in CMT research? HNF is looking for patients with a confirmed CMT diagnosis to participate in the CMT Biobank

Cannabis & CMT Webinar

March 25, 2024

Angie Roullier is the author of "Pot for the People: The plant, the people, and the shop policies of cannabis" - Cannabis Tutor/Patient Relations

Unstoppable Skyler Fisher: Triumphing Across Continents with CMT

February 27, 2024

In the fast-paced world of para triathlons, one name stands out among the rest: Skyler Fisher, a dynamic 19-year-old powerhouse representing Team USA.

Breaking News for SORD Deficiency Patients

February 15, 2024

The INSPIRE trial is a Phase 3 double-blind placebo-controlled registrational study evaluating the effect of once-daily (QD) oral govorestat (AT-007) in 56 patients aged 16-55 with SORD Deficiency in the US and Europe.

HNF Contributes CMTRN Data to C-Path’s RDCA-DAP

February 8, 2024

New CMT gene discovery, CRYAB

February 7, 2024

Do you have late onset autosomal dominant CMT2 - subtype unknown, with breathing involvement, unexplained cardiac complications, and/or congenital cataracts?

HNF’s CMT Genie: Because genetic testing for CMT has never been more critical

February 7, 2024

Collaborative efforts between researchers, healthcare providers, and patients, facilitated by the Hereditary Neuropathy Foundation, has created a synergy that has accelerated the pace of discovery.

Breaking News: HNF to Host "Revolutionizing Clinical Trials" Panel at Bio 2024

February 5, 2024

HNF is thrilled to announce that we have been accepted to host a 1-hour panel discussion during the Bio International Convention in San Diego, CA, in June 2024.

CMT Biobank: We Need Your HELP!

February 1, 2024

HNF is excited to continue collecting samples for researchers and industry to help develop treatments for CMT.

Virtual Chair Yoga, Healthy Heart & Backs to the Mat

January 31, 2024

Virtual Chair Yoga, Healthy Heart & Backs to the Mat

Reducing Genetic Testing Barriers for the Charcot-Marie-Tooth Community

January 29, 2024

Hereditary Neuropathy Foundation Partners with InformedDNA® on CMT Genie Project

HNF Launches Groundbreaking ‘ABCs of CMT Pain Management’ Guide

January 19, 2024