Patient stories from the Charcot-Marie-Tooth (CMT) community: lived experience, journeys, and voices featured by the Hereditary Neuropathy Foundation.
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Showing 49 to 55 of 55 in Stories
April 20, 2012
Di also did something special for Team CMT. “I took my body to the absolute limit yesterday, Sunday, April 15th, in honor of Chris Wodke's Boston Marathon run which took place the next day. I walked (no jogging or running) in one direction and had my husband pick me up when I couldn't go any further.”
April 17, 2012
Morgan Johnson doesn’t have Charcot-Marie-Tooth, but she is quickly learning everything she can about it.
March 26, 2012
“I call Charcot-Marie-Tooth a blind disease because you can’t see it. People say I look fine and can’t understand that I have a problem.
March 26, 2012
Recently, the 42 year old mom of three joined Team CMT- Richmond hoping to spread awareness and raise funds for research and a cure.
February 24, 2012
Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community.
November 17, 2011
"America's Friendliest Marathon," held in Richmond, VA this past weekend, included some important friends of the Hereditary Neuropathy Foundation who ran to raise awareness of Charcot-Marie-Tooth and to generate funds for research to find a cure.
September 3, 2011
The New York Times recently published an article about those living with Charcot-Marie-Tooth disease.
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