Unstoppable Skyler Fisher: Triumphing Across Continents with CMT
February 27, 2024
In the fast-paced world of para triathlons, one name stands out among the rest: Skyler Fisher, a dynamic 19-year-old powerhouse representing Team USA.
News & Stories
News from the Hereditary Neuropathy Foundation: research updates, clinical trial progress, partnerships, and advocacy wins for the Charcot-Marie-Tooth community.
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Showing 49 to 60 of 153 in News
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Breaking News for SORD Deficiency Patients
February 15, 2024
The INSPIRE trial is a Phase 3 double-blind placebo-controlled registrational study evaluating the effect of once-daily (QD) oral govorestat (AT-007) in 56 patients aged 16-55 with SORD Deficiency in the US and Europe.
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HNF Contributes CMTRN Data to C-Path’s RDCA-DAP
February 8, 2024
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New CMT gene discovery, CRYAB
February 7, 2024
Do you have late onset autosomal dominant CMT2 - subtype unknown, with breathing involvement, unexplained cardiac complications, and/or congenital cataracts?
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HNF’s CMT Genie: Because genetic testing for CMT has never been more critical
February 7, 2024
Collaborative efforts between researchers, healthcare providers, and patients, facilitated by the Hereditary Neuropathy Foundation, has created a synergy that has accelerated the pace of discovery.
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Breaking News: HNF to Host "Revolutionizing Clinical Trials" Panel at Bio 2024
February 5, 2024
HNF is thrilled to announce that we have been accepted to host a 1-hour panel discussion during the Bio International Convention in San Diego, CA, in June 2024.
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CMT Biobank: We Need Your HELP!
February 1, 2024
HNF is excited to continue collecting samples for researchers and industry to help develop treatments for CMT.
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Reducing Genetic Testing Barriers for the Charcot-Marie-Tooth Community
January 29, 2024
Hereditary Neuropathy Foundation Partners with InformedDNA® on CMT Genie Project
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HNF Launches Groundbreaking ‘ABCs of CMT Pain Management’ Guide
January 19, 2024
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HNF Partners with InformedDNA® on CMT Genie Project
January 10, 2024
a patient-initiated at-home genetic testing program, providing faster and more equitable access to critical genetic care for the CMT community and their health care providers.
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ABCs of CMT Pain Management Guide
December 12, 2023
ABCs of CMT Pain Management," a comprehensive guide that is a direct product of the Global Registry for Inherited Neuropathies (GRIN) initiative.
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Novartis CMT1A Update
October 23, 2023
In July 2023, Novartis announced the acquisition of DTx Pharma, a San-Diego based, preclinical stage biotechnology company focused on leveraging its proprietary FALCON platform to develop siRNA therapies for neuroscience indications.
