Patient stories from the Charcot-Marie-Tooth (CMT) community: lived experience, journeys, and voices featured by the Hereditary Neuropathy Foundation.
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Showing 37 to 48 of 55 in Stories
February 10, 2013
On Wednesday, January 29th, jewelry designer jaKe & anna will be sponsoring the NYC premiere of BERNADETTE at the old time soho Angelika Film Center in Manhattan. 50% of sales from this viewing will go to the Hereditary Neuropathy Foundation (HNF).
February 1, 2013
Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration.
December 3, 2012
These days, inspired by his love of family he runs on behalf of three generations of women with Charcot-Marie-Tooth disease
October 25, 2012
Together, she and Carol answered questions from young and old alike about Charcot-Marie-Tooth (CMT). “The festival was such a nice opportunity to let kids know about Arlene and raise awareness about CMT,”
October 25, 2012
Coming in March 2013, the sequel to parent and teacher favorite, Arlene On the Scene will be on the shelves!
October 4, 2012
While running the Philly Half-Marathon, Joe will be raising funds for the Hereditary Neuropathy Foundation (HNF). So far, he has raised $ 1105.00 through private donations and hopes to gain corporate sponsors as well.
July 12, 2012
Team CMT - Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.
July 12, 2012
A volunteer fire fighter for eight years, Alyson has managed to stay active, in spite of her CMT symptoms.
June 13, 2012
When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is an honor and I am humbled. It is the achievement,” she explains, “of a dream that seemed out of reach.”
June 11, 2012
The Hereditary Neuropathy Foundation (HNF) is thrilled to announce the completion of the film, “Bernadette.”
May 13, 2012
“An awesome event” is how members of Team CMT described the 2012 TD Bank NY Five Boro Bike Tour, held on Sunday, May 6th
April 23, 2012
Congratulations to Chris Wodke, manager of Team CMT, who placed second in the Mobility Impaired Division of the 2012 Boston Marathon on April 16!
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