News & Stories

News from the Hereditary Neuropathy Foundation: research updates, clinical trial progress, partnerships, and advocacy wins for the Charcot-Marie-Tooth community.

Showing 25 to 36 of 153 in News

NEW! Meet the CMT Dream Team!

February 26, 2025
2026 Clinical Trial Readiness Summit

February 17, 2025
MDA Awards Grant to HNF for Groundbreaking Digital Wearable Study on CMT!

February 3, 2025
7 Reasons You Can’t Miss the Nashville CMT Summit

January 28, 2025
Join Our CMT Summit Q&A Zoom

January 22, 2025

Have questions about HNF’s upcoming CMT Summit + Patient Retreat? We’re here to help! Join Us January 29th from 12:00pm - 1:30pm ET.
Dr. Kayla Cornett to Present Groundbreaking CMT Wearable Sensor Study at MDA Clinical and Scientific Conference

January 17, 2025
CMT Summit + Retreat 2025

January 16, 2025
Alesta Therapeutics Advances ALE2 to Target Rare Forms of CMT

January 13, 2025

Early preclinical research indicates that ALE2 could effectively slow or halt the progression of these debilitating symptoms, offering new hope for patients with these rare forms of CMT.
2025 HNF CMT Summit & Wellness Retreat

January 10, 2025

Experience the 2025 HNF CMT Summit & Wellness Retreat in Nashville, TN, April 24-26!
Welcome to the CMT Simplified Podcast by the HNF

January 7, 2025
CMT Breakthrough: FDA Grants Orphan Drug Status to NMD670

January 7, 2025

NMD670, has been granted Orphan Drug Designation (ODD) by the U.S. Food and Drug Administration (FDA)
Update on NMD Pharma Clinical Trial

November 19, 2024