Run With Purpose. Give With Heart.
December 28, 2022
On November 5, 2023 - Runners will take on the marathon to support Charcot-Marie-Tooth Disease research.
News & Stories
Patient stories from the Charcot-Marie-Tooth (CMT) community: lived experience, journeys, and voices featured by the Hereditary Neuropathy Foundation.
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Showing 13 to 24 of 55 in Stories
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Battersby Lab Donor Story: Fighter Moms Donate to Vital Research into Mitochondrial Diseases
October 4, 2022
Battersby Lab Donor Story Fighter Moms Donate to Vital Research into Mitochondrial Diseases
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Meet Michael Watkins, Team CMT Member
May 31, 2022
Michael Watkins will participate for the 2nd time in the Leadville Trail 100 MTB race on August 14, 2022, in Leadville, CO.
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Meet Bosco
May 10, 2022
Meet Bosco, Zach Houliares service dog. Learn more about how service dogs can help those living with CMT!
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CMT Thrive Summit, Dating with a Disability
March 10, 2022
Dating, relationships, and intimacy play significant roles in the human experience.
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EmBrace It Podcast: Episode #5 Love & Disability, 5 Red Flags to Avoid
February 10, 2022
Finding love can be challenging and even more so when you have a disability. In this episode, Lainie & Estela share their thoughts on a listener’s online dating questions as well as 5 RED Flags to steer clear of when looking for a loving partner.
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HNF Welcomes New Board Member, Natalia Salejko
May 10, 2021
HNF Welcomes New Board Member, Natalia Salejko
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Meet HNF's Newest International Board Member, Natalia Salejko
April 20, 2021
Natalia, her family, and her growing team are laser-focused on finding a cure for CMT through aggressive fundraising through many channels.
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CMT-Connect Webinar Dating & CMT
January 11, 2021
Join Estela & Amin as they discuss navigating online dating and relationships with CMT.
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Matt Downing Takes the Reins as HNF’s New Board Chairman
September 3, 2020
Matt Downing has been selected as Chairman of the HNF Board of Directors
