Schedule of Events - Saturday, October 4, 2025

The Nerve to Cure

CMT Social + Science Day with Evening Fundraiser Dinner

NextGen Precision Health: 1030 Hitt Street Columbia, MO 65211

Hosted by Dr. Ryan Castoro, D.O., M.S. & the Hereditary Neuropathy Foundation

Assistant Professor of Physical Medicine and Rehabilitation & Neuromuscular Medicine

University of Missouri's NextGen Precision Health

Daytime Agenda

12:00 - 12:30 PM | Check-In & pick up your welcome packet and event schedule.

12:30 - 12:40 PM | Event Orientation & Booth Instructions ~ Overview of research participation opportunities, booth locations, and blood donation process.

12:40 - 12:50 PM | Opening Remarks Welcome ~ Ryan Castoro, D.O & Allison Moore, HNF, CEO

12:50 - 1:00 PM | Genetics and CMT: Dr. Constatine Farmakadis M.D. University of Kansas Medical Center

1:00 - 1:10 PM | Dysfunctional Myelin in CMT1A and HNPP: Kathyrn Moss Ph.D. NextGen Precision Health, University of Missouri

1:10 -1:20 PM | Models of CMT: Dr. Curtis Nutter Ph.D. NextGen Precision Health, University of Missouri

1:20 - 1:30 PM | Clinical Outcome Measure in CMT Trials: Dr. Kris Kelly PT, DPT, NCS, CPT Nextgen Precision Health, University of Missouri

1:30 - 2:45 PM | Explore the Event Zones

CMT Resource Booths - Vendors/Booths, genetic counseling, bracing/AFO solutions, PT/OT strategies, surgical insights, adaptive tools & daily living gadgets.

Research in Motion Zone - Learn about ongoing clinical trials, donate blood to the CMT Biobank, enroll in the CMT DEPLOY Natural History Study.

2:45 - 3:00 PM | Thank You & Transition - Closing announcements for the afternoon segment.

3:00 - 5:00 PM | CMT Social Community Meet-Up (Atkins Seminar Room) Exclusive to individuals living with CMT and their families.

Includes:

Kids Corner - OT-inspired sensory play, adaptive books/toys/games, adaptive shoe try-ons.

Parent Connection Circle - Connect with fellow caregivers, speak with medical and emotional health experts, learn advocacy tools for school.

CMT Library Lounge - Resources on pain, fatigue, and mental wellness; self-care and relationship guides; children's and teen books about CMT.

1-on-1 CMT Expert Consultations: Meet with bracing, surgery, PT & OT health providers for free evaluations and care.

Evening Agenda 5:00pm - 8:00pm (There is a charge to attend the dinner)

5:00 - 6:00 PM Cocktail Hour

6:00 - 6:30 PM Dinner Served

6:30 - 7:00 PM HNF Presentation

7:00 - 7:30 PM NextGen Presentation

7:30 - 8:00 PM Dessert, thank you

*For on-site research to make sure everyone can participate we will offer research appointments on Friday, October 3rd from 8:00am - 6pm.

REGISTER TODAY!