Social media can be a valuable resource for finding support and answers to CMT questions, but it isn’t the right fit for everyone. Not everyone uses social media, and not everyone feels comfortable discussing health questions where friends and family might see them.

Providing safe virtual spaces for the CMT community is a priority for HNF. We believe everyone deserves access to the information that matters most to them. That’s why HNF has partnered with Inspire to create a growing community of over 9,891 members called CMT Safe Space.

Why CMT Patients Choose CMT Safe Space

  • Increased privacy: CMT Safe Space is closed to the public. Only group members can see the content and discussions.
  • Greater focus: Members can search by topic to find relevant conversations. Discussions stay on-topic and can be archived for future reference.
  • Enhanced sense of community: Because CMT Safe Space is focused and member-only, it fosters a stronger sense of belonging. Members consistently report feeling more supported, validated, and understood.
  • Access to reliable information: CMT Safe Space is moderated by HNF and provides vetted information, treatment options, and resources for managing symptoms.
  • Reduced stigma: Members have the option to post under a screen name, which allows people to share experiences without fear of judgment or unwanted disclosure.
  • Location-based connections: Members can optionally share their zip code to find others nearby who can recommend local resources, healthcare providers, and events, turning online community into real-world connection.