A plain-language starting point for life with CMT
Charcot-Marie-Tooth disease can be a lot to take in, whether you were diagnosed last week or years ago. The Essential CMT Guide gathers what HNF has learned over more than twenty years into one clear booklet you can read in an afternoon and come back to whenever you need it.
It is written in plain language for patients and families, not for clinicians. Inside you will find the essentials of what CMT is, how it is diagnosed, and the everyday care that helps most, along with the questions worth asking and the people worth knowing.
What is inside
- What CMT is, in plain terms, and how it affects the body over time
- How a diagnosis is confirmed, and why knowing your exact subtype changes what you can do next
- Building your care team and finding a doctor who understands CMT
- Day-to-day care that helps most: bracing, therapy, pain, and energy
- The questions worth asking at your next appointment
- A CMT alert wallet card to carry, and Bernadette's story in her own words
- Ways to connect with the wider CMT community
